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Data Controller: Americans for Safe Access
Contact: [email protected]
Information We Collect
The use of the website of Americans for Safe Access is possible without providing any personal data. However, certain features of our site work better with your information. For example, without your zip code and address it is difficult for us to determine who your Congressional representatives are but you would still be able to access information about federal policy generally.
You can choose what information you provide about yourself, such as your name and e-mail address. Our site provides the option to submit your name, email, phone number, address, city, state.
If you register for SafeAccessNow.org (including by “following,” “liking,” linking your account to SafeAccessNow.org, etc., on a third party website or network), the information you enter to register will be collected. If you correspond with us by email, with your consent, we may retain the content of your email messages, your email address and our responses. We may also retain any messages you send through SafeAccessNow.org. You may provide us information in user content you post to SafeAccessNow.org.
If you willingly provide it, we may also collect information about your mental or physical health in order to better target our content. An example of this would be using this information to create a condition-based informational booklet or sending a targeted email to individuals with a particular condition such as eligibility to participate in a clinical trial. When we collect health data, we ensure that we follow all applicable privacy laws including the Health Insurance Privacy and Portability Act.
Third Party Services
Americans for Safe Access uses the NationBuilder platform to organize our community of members, supporters and prospects. You can read more about that company and its features and policies at NationBuilder.com. When you visit SafeAccessNow.org, NationBuilder may send one or more cookies - a small text file containing a string of alphanumeric characters - to your computer that uniquely identifies your browser and lets NationBuilder help you log in faster and enhance your navigation through SafeAccessNow.org.
A cookie does not collect personal information about you. A persistent cookie remains on your hard drive after you close your browser. Persistent cookies may be used by your browser on subsequent visits to the site. Persistent cookies can be removed by following your web browser’s directions. A session cookie is temporary and disappears after you close your browser. You can reset your web browser to refuse all cookies or to indicate when a cookie is being sent. However, some features of SafeAccessNow.org may not function properly if the ability to accept cookies is disabled. You can read more about how the NationBuilder service interacts with and protects your information at nationbuilder.com/privacy and nationbuilder.com/confidentiality.
How We Use Your Information: We use the personal information you submit to operate, maintain, and provide to you the features and functionality of SafeAccessNow.org. We don’t use your personal information to make automated decisions.
By providing Americans for Safe Access your email address (including by “following,” “liking,” connecting your account to SafeAccessNow.org, etc., on a third party website or network), you consent to email communications our using the email address to send you SafeAccessNow.org-related notices, including any notices required by law, in lieu of communication by postal mail. You also agree that we may send you notifications of activity on SafeAccessNow.org to the email address you give us, in accordance with any applicable privacy settings. We may use your email address to send you other messages, such as newsletters, changes to features of SafeAccessNow.org, or other information. If you do not want to receive such email messages, you may opt out at SafeAccessNow.org/unsubscribe.
Following termination or deactivation of your Americans for Safe Access account, Americans for Safe Access may retain your profile information and user content for a reasonable time for archival purposes. Furthermore, Americans for Safe Access may retain and continue to use indefinitely all information (including user content) contained in your communications to other users or posted to public or semi-public areas of SafeAccessNow.org after termination or deactivation of your account.
Americans for Safe Access reserves the right, but has no obligation, to monitor the user content you post on SafeAccessNow.org. We reserve the right to remove any such information or material for any reason or no reason, including without limitation if in our sole opinion such information or material violates, or may violate, any applicable law or to protect or defend our rights or property or those of any third party. Americans for Safe Access also reserves the right to remove information upon the request of any third party.
How We Share Your Information
Except as provided in this policy, Americans for Safe Access will not share any of your personal information at any time with any organization. However, as ASA is the largest patient focused nonprofit in the the United States, we may contact you on behalf of another organization doing work related to ours. Examples of these other organizations include organizations such as the U.S. Pain Foundation, the Epilepsy Foundation, various cannabis based veteran service organizations and others. This list is not meant to be exhaustive but when ASA contacts you on behalf of these organizations, the communications will be prepared by ASA staff.
ASA occasionally allows other organizations to send mail to individuals on its lists. In these cases, lists containing only names and addresses (no contribution data or other personal information) are delivered to a third-party mailing house for one-time use for that organization’s mailing. To request that we never allow your contact information to be used even in this secure manner, please contact [email protected] If possible, please include your full name, postal address, phone number, and the email address at which you receive messages from ASA.
Any personal information or content that you voluntarily disclose for posting to SafeAccessNow.org, such as user content, becomes available to the public, as controlled by any applicable privacy or website customization settings. If you remove information that you posted to SafeAccessNow.org, copies may remain viewable in cached and archived pages, or if other users have copied or saved that information.
How We Protect Your Information
Americans for Safe Access cares about the integrity and security of your personal information. We cannot, however, ensure or warrant the security of any information you transmit to Americans for Safe Access or guarantee that your information on the service may not be accessed, disclosed, altered, or destroyed by breach of any of our physical, technical, or managerial safeguards. Your privacy settings may also be affected by changes to the functionality of third-party providers, such as social networks. Americans for Safe Access is not responsible for the functionality or security measures of any third party.
To protect your privacy and security, we take reasonable steps (such as requesting a unique password) to verify your identity before granting you access to your account. You are responsible for maintaining the secrecy of your unique password and account information, and for controlling access to your email communications from Americans for Safe Access, at all times.
Compromise of Personal Information
Your Choices About Your Information
You may, of course, decline to submit personally identifiable information through SafeAccessNow.org, in which case Americans for Safe Access may not be able to provide certain services to you. You can review and correct the information about you that Americans for Safe Access keeps on file by contacting us directly at [email protected]
Protecting the privacy of young children is especially important. For that reason, Americans for Safe Access does not knowingly collect or solicit personal information from anyone under the age of 13. If you are under 13, please do not send any information about yourself to us, including your name, address, telephone number, or email address. In the event that we learn that we have collected personal information from a child under age 13 without verification of parental consent, we will delete that information as quickly as possible. If you believe that we might have any information from or about a child under 13, please contact us at [email protected]
Links to Other Websites
How Can you Verify Your Information?
You may contact Americans for Safe Access at anytime to verify, update, or correct any information we may have. You may also contact us to have old or out of date information removed. You are also welcome to ask us at any time how we have used your information. Provided we can verify your identity, we are happy to give you reasonable access to your personal information. You may also ask us to change your preferences regarding how we use your information, or let us know that you no longer wish to be contacted by Americans for Safe Access
Americans for Safe Access
1624 U Street NW
Washington, D.C. 20009
Additional Information for Users Located in the European Economic Area (“EEA”) from our host Nationbuilder:
If you are a resident of the European Union, the General Data Protection Regulation (“GDPR”) will come into force on May 25, 2018. While we take significant measures to protect privacy of your information, we are working toward ensuring that we are compliant with the GDPR rules by the time they become effective.
If you are a resident of country other than the United States, you acknowledge and consent to our collecting, transmitting, and storing your Personal Information out of the country in which you reside.
Transfer of data outside of the EEA
We may transfer some or all of your personal information outside of the EEA. The privacy laws of the receiving country may be different from those in the EEA and may not have adequate data protection standards. We will always have appropriate safeguards in place when transferring your personal information outside of the EEA, and you may ask us for a copy of these safeguards.
You have the following rights regarding your information:
- The right to rectification: You’re entitled to have your information corrected if it’s inaccurate or incomplete.
- The right to erasure: This is also known as ‘the right to be forgotten’ and, in simple terms, enables you to request the deletion or removal of your information where there’s no compelling reason for us to keep using it. This is not a general right to erasure; there are exceptions.
- The right to restrict processing: You have rights to ‘block’ or suppress further use of your information. When processing is restricted, we can still store your information, but may not use it further. We keep lists of people who have asked for further use of their information to be ‘blocked’ to make sure the restriction is respected in future.
- The right to data portability: You have rights to obtain and reuse your personal data for your own purposes across different services. Eg, if you decide to switch to a new provider, this enables you to move, copy or transfer your information easily between our IT systems and theirs safely and securely, without affecting its usability.
- The right to object: You have the right to object to certain types of processing, including processing for direct marketing (which we do only with your consent).