Pages tagged "Testimonials"

  • Medical Cannabis helps ALS Patient Outlive Support Groups and Neurologists

    Guest blog by Jahan Marcu. Cathy Jordan was on a panel with Jahan Marcu at the Cannabis Therapeutics Conference in Arizona.  Before taking the stage, she discussed the medical use of cannabis for ALS with the Vice Chair of ASA's Medical and Scientific Advisory Board. Cathy Jordan first noticed something was wrong in summer of 1985 when she couldn’t pick things up. Her muscles weren’t responding. A year later, in 1986 she was diagnosed with ALS (Amyotrophic Lateral Sclerosis). ALS is a disease characterized by the death of motor neurons leading to loss of limb control, breathing, swallowing, speech, and widespread cellular dysfunction. Most cases of ALS are sporadic; it is not a viral or autoimmune disease. “Most people (ALS patients) start using a feeding tube because they are afraid of choking to death”, says Cathy. After her diagnosis, she was given an expiration date; In 1986, she was given 3-5 years to live/die according to her neurologist,  Dr.Fink. Nearly 3 decades later she is still alive, living with ALS. “All my docs are retiring or dead, I’ve outlived 5 support groups and 4 neurologists,” said Cathy. This actually posed a problem for Cathy, who basically lost her social security benefits because she lived passed her expiration date. The state of Florida said her ID and regular documentation wasn’t good enough to prove she was alive and to continue to receive benefits. She had to ask her neurologist at the time, to fill out paperwork to prove she was still alive. Mrs. Jordan began using Cannabis from a Florida grower to treat her ALS in the late 80’s. “Donny Clark provided my medicine, grown in the Myakka River Valley…he was busted and sentenced to life in prison, and that strain of Cannabis was lost. Years later he was pardoned on the last day of the last term of President Clinton,” says Cathy, “You know they say the fountain of youth is in Florida, maybe it was something in the soil that made this plant help me…I don’t understand why Doctors wouldn’t study me—I want to know why this is helping me.” At first Doctors would not accept Cathy’s marijuana smoking and extended life span. Regardless of what she did, “a UPENN doctor told me bluntly, I would die either from suffocation or drowning in my own fluid.” Other Doctors also thought that smoking anything would impair her lung function, and threatened to have this paralyzed women committed because she must be crazy if she thought Cannabis was helping her. “I visited a neurologist at Duke University…when I told him that I was smoking Cannabis he turned into PeeWee Herman. He didn’t know what to do with me, he was afraid. He wouldn’t even take my blood pressure because I was using an illegal drug.” “I asked my docs: would you like a drug that is neuroprotective, an antioxidant, and an anti-inflammatory?,” says Cathy, “They then said Yes and asked me if I knew of one. I said yes, [it’s] Cannabis.”   There are ALS patients associations that fight for the right of patients to die with dignity, “But what about my right to life?” says Cathy. “Keeping my medicine illegal removes my right to life.” Nearly three decades later, the science has caught up with this patient. Scientists created a mouse with ALS, which was very exciting for Cathy. Research has shown that THC and other cannabinoids can benefit mice with ALS. The mounting evidence of cannabinoids halting the progression of ALS has started to change the attitudes of Doctors, prominent researchers have recently called for ALS clinical trials with Cannabis or cannabinoids. “They all agree today that I should smoke Cannabis,” says Cathy, “26 years later my original neurologist, fought [successfully] to make sure Cannabis is legal for patients in Delaware.” Researchers think Cannabis may help ALS patients relieving pain, spasticity, drooling, appetite loss, and has minimal drug-drug interactions and toxicity.
  • With Great Hope

    Another year is winding down and our movement has added more amazing victories to our impressive list. From taking down anti-medical marijuana AG candidate Steve Cooley to passing access regulations in Washington DC, ASA has shown the power of grassroots patient advocacy. With a new year looming, this is a great time to reflect and to think about what the future will bring. As a patient advocate, this is the time that I think about how I personally contributed to creating safe and legal access and what that commitment will look like next year. As Executive Director of ASA, it is my job and commitment to our members to look at the national landscape and to prepare our movement for the challenges and opportunities coming.  Part of that preparation this year was traveling across the country, taking the pulse of our movement by hosting five and six hour-long strategic planning meetings with our community.  In every city, I met individuals with medical conditions that made every moment of their life a struggle as well as individuals at the end of their lives - MS patients with months to live, women whose cancer had progressed passed treatment, a forty year old with ALS so severe he needed specialized equipment to communicate. Over and over again I was moved to tears by the passion and commitment of our members. Members who may not be around to see the results of their organizing but still want to be a part of change. Members who, despite great discomfort, are advocating so that YOU and I can have safe access. As a member of ASA, you are connecting these individuals into a movement. As a member of ASA, you are making sure that our patient advocates have the resources they need to be effective and strategic. We held meetings with our communities this year because we thought that was the right way to win; now we know that it’s the only way to win. Safe and legal access will only happen if WE, the movement, make it happen. We’re in a unique position this year to take your voice to the top. We have political capital built up and we’re ready to spend it. Because of our wins last year, your contribution today will go further than it ever has before. Help us take your voice to DC. We all have a role in this movement. I’ve told you about the passion and commitment of those at the end of their lives, those with the very least to gain and the invaluable role they’re playing. I believe one of my roles is to create a world where our terminally ill do not spend the last months of their lives in six-hour policy meetings and we need your contribution to make that happen. So the question now is, can you fulfill that role? Can you sacrifice a fraction of what they have given so that we can build a safer, fairer world? Thank you, as always, for your generous support. I wish for your happiness in the new year.
  • ASA Video Testimonial - 3rd Installment

    Welcome to the latest installment of ASA’s video testimonial project. As many of you may remember, the video testimonial project has been designed to help educate people about medical cannabis by having patients and supporters share their stories. This project was also designed to help people like you educate your friends and family about medical cannabis by sharing these videos with your community. Forward this blog to family, friends, and community members and help spread the word about medical cannabis. Also, check back here next Monday for the next installment of the video testimonials. Roy from Marin County, CA Thank you again to Carson Higby-Flowers for volunteering to record, edit, and produce the testimonials. Also, thank you to all of the brave patients, supporters, and advocates who took the time to come in and participate in the video shoot. Check out last week’s installment here.
  • ASA Video Testimonial- 2nd Installment

    Welcome to the latest installment of ASA's video testimonial project. As many of you may remember, the video testimonial project has been designed to help educate people about medical cannabis by having patients and supporters share their stories. This project was also designed to help people like you educate your friends and family about medical cannabis by sharing these videos with your community. Forward this blog to family, friends, and community members and help spread the word about medical cannabis. Also, check back here next Monday for the next installment of the video testimonials. Richard from Berkeley, CA Thank you again to Carson Higby-Flowers for volunteering to record, edit, and produce the testimonials. Also, thank you to all of the brave patients, supporters, and advocates who took the time to come in and participate in the video shoot. Check out last week's installment featuring three medical cannabis patients here.
  • ASA Introduces New Video Testimonials

    Watch 3 Medical Cannabis Supporters Share Their Stories As the National Field Coordinator for ASA I meet patients, medical professionals, caregivers, and people from all walks of life on a daily basis. When meeting people new to the movement I am regularly asked who supports medical cannabis and why should I get on board? In the past, I would then take several minutes to explain, but that is about to change today! Over the next month on each Monday, ASA will be releasing video testimonials through our blog of medical cannabis supporters to help educate people about medical cannabis. Below are three Bay Area medical cannabis supporters who volunteered to share their stories to help spread the word about medical cannabis. The video testimonial project has been designed to help educate people about medical cannabis by having patients and supporters share their stories. This project was also designed to help people like you educate your friends and family about medical cannabis by sharing these videos with your community. Forward this blog to family, friends, and community members and help spread the word about medical cannabis. Also, check back here next Monday for the next installment of the video testimonials. Steve from Oakland, California Yvonne from Richmond, California Carole from Fremont, California Thank you to Carson Higby-Flowers for volunteering to record, edit, and produce the testimonials. Also, thank you to all of the brave patients, supporters, and advocates who took the time to come in and participate in the video shoot.